Our Little Jacob

This is a blog detailing the daily struggles of having a child with Spastic Quadriplegic Cerebral Palsy. My son is 1 of 2 surviving triplets. My son and his identical twin brother Logan who passed away at 6.5 months old had Twin to Twin Transfusion before they were born. They were delivered at 28 weeks to try and save all 3 of their lives. I have a hard time connecting with other parents raising children with severe disabilities so, I thought I would branch away from my other blog to blog just about my son and his special needs in hope of reaching out and supporting other moms dealing with similar issues.

Monday, May 14, 2012

Phenol and Botox update

There is definitely a noticeable difference in Jacob's arm and legs. More from the phenol than the botox at this point. The muscles that got the phenol are loose. He  has not scratched his face in weeks. His legs are not crossing like they were before. When he stands in his gait trainer the muscles between his legs may be to loose. His legs now slide apart like he is doing a split, but he can pull them back together and take steps still. He is not crying like he used to and he is not arching which tells me he must be more comfortable. I do not know if it really has anything to do with his arms and legs injections, but him being less ridget and more comfortable I think has calmed his vomiting down. He has vomited but goes days in between his episodes. Overall I am very impressed. He still want to walk on his toes though and he still wants to keep his hands clinched.

1 comment:

  1. My 2 year old son is getting the phenol/botox combo tomorrow for the first time. Kudos to you for blogging your journey. I look forward to reading it all since I just discovered it today.