Jack took Jacob to our local hospital for a schedule gastric emptying study today. He went without his E.S.S. Gran for his undiagnosed gastropheresis for 24 hours...(I begged the doctor to try the med about a year ago because I researched and he had all the signs and symptoms of gastropheresis and he has been on it ever since) and he also went without his reflux meds for 12 hours. My husband was at the hospital with him FOREVER. It was scheduled for 1:30 and they did not get home until 6:30....there was a lot of waiting going on. Anyways once he got back to nuclear medicine they gave him the food with the contrast and left him under a machine for an hour. They only gave him 50cc. Apparently after the 1st hour he had very little digestion of the food when he should have digested at least 50% in 1 hour. So he had to sit under the machine for a 2nd hour. My husband did not really tell me what the 2nd hour showed except that his digestion was better. I guess they also caught one of his coughing near vomiting episodes as well. He was told the results would be back in 2 days. So I will call GI of Friday and see if they have the reports and then what his suggestions are for suregery The question being does he need more than a nissen done?
I can't wait for them to figure the GI thing out. I want to know if he will need the surgery to help his stomach content empty fast and the nissen to stop the vomiting, or just the nissen etc. I hate that he has to go though major surgery in the near future, but I look forward to the positive. I'm sure he will be glad not to have to taste the vomit and nasty unflavored formula. I hope the surgery WORKS!
Our Little Jacob
This is a blog detailing the daily struggles of having a child with Spastic Quadriplegic Cerebral Palsy. My son is 1 of 2 surviving triplets. My son and his identical twin brother Logan who passed away at 6.5 months old had Twin to Twin Transfusion before they were born. They were delivered at 28 weeks to try and save all 3 of their lives. I have a hard time connecting with other parents raising children with severe disabilities so, I thought I would branch away from my other blog to blog just about my son and his special needs in hope of reaching out and supporting other moms dealing with similar issues.