Our Little Jacob

This is a blog detailing the daily struggles of having a child with Spastic Quadriplegic Cerebral Palsy. My son is 1 of 2 surviving triplets. My son and his identical twin brother Logan who passed away at 6.5 months old had Twin to Twin Transfusion before they were born. They were delivered at 28 weeks to try and save all 3 of their lives. I have a hard time connecting with other parents raising children with severe disabilities so, I thought I would branch away from my other blog to blog just about my son and his special needs in hope of reaching out and supporting other moms dealing with similar issues.

Tuesday, June 10, 2014

Jacob got a new Rifton prone stander

 Jacob has been a busy boy lately. He got this new stander. He also got ultraflex knee immobilizers and a new pair of AFOS and shoes. He went on his 1st roller coaster ride today at Legoland today. Also added some pictures of him at therapy in his new knee immobilizers in the cage. Daddy took him skating on Saturday at his sister's birthday party.














2 comments:

  1. You seem like an absolutely incredible mum :)

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  2. Hi, I am a mum of a 7 year old boy (light of my life). I thought I accepted and understood his condition, but recently attended an appointment and have never felt so confused and am hoping some one can help. My son has permanent brain damage and effected his lower body severely he can not walk or stand with equipment, his upper body strength isn't to good, his hands and arm are pretty weak but not to bad. My son is extremely stiff and has pretty bad diatonic movement out consultant from birth and the whole developmental team have said there is no treatment to help him improve with day to day life, and have given us just pain relief to help with the new pain that has just began. 2 days ago we were seen by a team in st Thomas hospital and was shocked to learn that the actual care plan that my son was given by his current consultant is the actual cause of his pain, the new team have suggested seeing a orthopaedic surgeon to have tissue removed from his hamstrings, to help with the muscle shortening that he has.so One day I went on line to the Internet to know more clue about the cp Virus i came across a review of a lady saying that she got her cp Virus cured by A great herbal spell caster Called Dr.lewishill which gives a permanent relief to cp symptoms and cures it. Lord know i needed help so i contact him I made an order of his medicine and my son do not experience cp anymore and that was how my son was cured form it. So if you are in the same situation as my son contact him on this email drlewishill247@gmail.com for advise and how to get the medicine. Thanks

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