Spastic Quadriplegic Cerebral Palsy: our Spastic Quad CP son in Macclaren Major stroller

Our Little Jacob

This is a blog detailing the daily struggles of having a child with Spastic Quadriplegic Cerebral Palsy. My son is 1 of 2 surviving triplets. My son and his identical twin brother Logan who passed away at 6.5 months old had Twin to Twin Transfusion before they were born. They were delivered at 28 weeks to try and save all 3 of their lives. I have a hard time connecting with other parents raising children with severe disabilities so, I thought I would branch away from my other blog to blog just about my son and his special needs in hope of reaching out and supporting other moms dealing with similar issues.

Tuesday, May 12, 2015

our Spastic Quad CP son in Macclaren Major stroller

I've posted about this stroller Before and all the strollers we have had. This had been the 1 we use the most and for the longest. Jacob will be 6 in 2 months. He is a tall about 42 inches and 53 lbs. We still use the size 2 special tomato chair in it. We tilt the chair leaving a gap at the back/ bottom of the chair. We secure it with the strap that comes with the chair around the back of the stroller. It works well overall. We do have some head control issyes and he likes to lean left but this option has been best for going out in public without taking the 70+ pound wheelchair.

I'm posting today about the accessories that you can buy with the stroller. Today I installed the $44 sunshade I bought from Amazon.com. It is okay. It doesn't flip up out of the way. It is fixed in 1 spot. It is easy to remove though. You can fold the stroller with it attached, it just looks weird, but it wirks. I honestly haven't read the directions on it there is a certain way to fold it with the stroller or not. I was happy it fit over the tomato seat. his head is right a the top and he is just about to small for this seat but for now it is great.

I like to make sure things will work before ai spend big money on them. I'm working on buying accessories so he can sit in the stroller without the tomato seat. His head just above the back rest of the stroller when sitting in it without the seat.

Over the weekend I made my own chest pads aND made really ghetto lateral supports just to see how he sat before I ordered the factory ones. I think I will keep my chest pad, but I did find the laterals on ebay for $65, so I bought them. I will update this again once I have the rest of the accessories. For now this is what I have.