Anyone that is on FB and hasn't subscribed to any of the special needs equipment groups should check them out.
Jacob got a medium gait trainer when he was 3. It was paid for by my private insurance company. Since then I have left my job and my husband's insurance sucks. Jacob is now on CMS/ Pedi-Care (Florida) I have been told it is hard to get gait trainers covered unless they can navigate them through a room. Well Jacob can bear weight and walk forward ina straight line, but other than that is is more just something for him to sit and stand in whenever he feels like it more than walking. I lock the wheels in place and let him stand. I put slack in the seat so he has to bend his knees a little to sit when he needs a break. I wasn't even gking to bother trying to fight insurance for the next size up, because they just paid for his crappyou standard that I hate just over a year ago. This being said...I happen to be causing through my FB news feed a few months ago now and someone in Georgia was offering 1 for FREE! I happened to be waiting for income tax time to spend the $1400 to buy the new frame out of pocket.
You better bet my sister and I took a weekend to drive 8 hours each way to Georgia from central FLoria to pick it up for him. Thank you to the very generous family that gave us this wonderfulink gift! We passed our medium gait trainer to another family I know personally. His new pacer just fits him. He will get years of use out of this. I am thrilled there are people out there willing to pass on their equipment.
We recently were fitted for a pair of HKFO to help with how his legs turn out and give him better positioning, but 2 appointments later they still don't fit right.
Our Little Jacob
This is a blog detailing the daily struggles of having a child with Spastic Quadriplegic Cerebral Palsy. My son is 1 of 2 surviving triplets. My son and his identical twin brother Logan who passed away at 6.5 months old had Twin to Twin Transfusion before they were born. They were delivered at 28 weeks to try and save all 3 of their lives. I have a hard time connecting with other parents raising children with severe disabilities so, I thought I would branch away from my other blog to blog just about my son and his special needs in hope of reaching out and supporting other moms dealing with similar issues.