Our Little Jacob

This is a blog detailing the daily struggles of having a child with Spastic Quadriplegic Cerebral Palsy. My son is 1 of 2 surviving triplets. My son and his identical twin brother Logan who passed away at 6.5 months old had Twin to Twin Transfusion before they were born. They were delivered at 28 weeks to try and save all 3 of their lives. I have a hard time connecting with other parents raising children with severe disabilities so, I thought I would branch away from my other blog to blog just about my son and his special needs in hope of reaching out and supporting other moms dealing with similar issues.

Wednesday, July 31, 2013

Free Diapers and New Leg Braces

Today was a REALLY GOOD day! From my understanding my son could not get diapers paid for by Medicaid/CMS until he was 4, plus he had private insurance until April 2013 and medicaid as a 2nd insurance and it was always a huge struggle to get them to pay for anything. Now my son has medipass and CMS and things are MUCH better and I have no issues getting anything approved (so far).

So, I called his doctor today. (He turned 4 a little less than 2 weeks ago) The doctor wrote me a script for 150 diapers a month and took it to a local supply place our CMS social worker referred us to. They were really great they actually gave me 180 diapers and chuck pads for him to use at night. They told me if I switched all of his medical supply needs over to them they would give me a free pack of diaper wipes for each case of formula he had. This offer is tempting, but not really in the mood to have get the scripts again at the moment. They will also deliver everything. Today I picked it up.

We have been trying for over a year to get leg braces for Jacob to wear at night. We tried 2 different knee immobilizer type advices and neither worked for him. So SOMEONE FINALLY LISTENED TO ME. Last visit with Shriners they finally said they would make use custom leg braces. He now has braces that go from his feet up to his thighs to wear at night. Hoping this will help him not need to get injections in his legs so much.

On a side not I recently read that children with certain qualifying diagnoses (in the state of FL) can get diapers paid for through insurance before the age of 4. So, I asked today at the medical supply place for a friend and they said as long as the child is on CMS they CAN provide diapers at any age with a prescription. Dang and to think I have been buying diapers all this time ;-)

They gave me 150 chucks pads and 10 packs of diapers in size 6 with 18 to each pack. I used the 1st one tonight. They seem kinda thin. They are definitely no Huggies, but hope they work well. They look comparable to me to the Target brand I buy when money is tight and I have no coupons.


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  2. I found your blog this evening while trying to find any help with my CP daughter 2 yrs old does not want to be put down. I have been holding her for they last 20 months. In March she got her Mic-key button due to vomiting everyday several times a day. She has now gained weight but does not want to be alone. She is mentally 1 month. She does not sit, does not hold or grasp, barely holds her head. Recently we added Nutritional Yeast and DHA oil to her Pediasure and noticed a very slight cognitive improvement. I very much like your blog and will add it to my favorites. Thank you, I know you are busy.