Our Little Jacob

This is a blog detailing the daily struggles of having a child with Spastic Quadriplegic Cerebral Palsy. My son is 1 of 2 surviving triplets. My son and his identical twin brother Logan who passed away at 6.5 months old had Twin to Twin Transfusion before they were born. They were delivered at 28 weeks to try and save all 3 of their lives. I have a hard time connecting with other parents raising children with severe disabilities so, I thought I would branch away from my other blog to blog just about my son and his special needs in hope of reaching out and supporting other moms dealing with similar issues.

Thursday, January 17, 2013

The new found love for our Rifton again. Thanks Rifton!

Jacob got a nice new present from Rifton. As I have posted priviously Jacob's size small hard plastic hip postioner was just to small and not working for us. This is the seat that goes between his legs. He was unable to use his gait trainer for more than 10 minutes without having deep red grooves in his theighs that eventually would cause a pressure sore.
We were blessed to have been donated a pony gait trainer which allowed Jacob to stand, biut he kept his legs in front of him instead of behind him and never took steps. It was working for us as a less restrictive stander.
Very recently we were blessed with the opportunity from Rifton to try the Rifton Pelvic Support. I was excited to try this. It is more of a sling between the legs instead of a hard seat. It is soft and non ridget material. My son looks GREAT in his Rifton again!!! His hips are postioned behind him again allowing him to be in a position to move his legs and make it across the room again. I will continue to update on how if effects him and his skin after being in it a few times. he was really excited to be back in his Pacer, giving him some mobility again. I truely thinks he understand that he can move in this rather he has the coordination and the vision needed to navigate it is another story. I am a happy mama to to see a huge smile on my face and my baby moving across the room again!!!!

***Update*** He still gets some deep red marks on his thighs after being in his gait trainer for 30 minutes, but it is not cutting into his legs like it was before. I hope I can do some more adjusting to make it better. He has not been able to get in his gait trainer for a few days because his g-tube site has been having issues and he has been in pain.


1 comment:

  1. Yea! I am SO glad for you guys! I am even more impressed that Rifton stepped in and helped to fix the problem! What a blessing!!!