I bought this for the summer so I don't have to lift his 62 lb wheel chair in and out all summer during our 3 weekly therapy visits. I might hate it next week like the convaid we tried..not that I hated that one it just didn't work for us.
I seen someone post a few months ago on Facebook about an idea for a bed for a special needs child. Well of course I needed that to. Searched on Craigslist and ta-da the Step 2 Loft bed I was searching for had just been posted for $75 2 hours prior. It was mine. mine. Mine! I really love this bed for now. Eventually we will work on getting him an actual hospital/sleep safe type bed, but as a cheap alternative for a non mobile child this is wonderful. At perfect waist height. Makes late night diapers changes easier. His matress is thicker than normal because of the memory foam so we added a board that we cushioned "just incase" to secure the opening toward the floor.
There has been talk of having a baclofen pump implanted. We met with a neurosurgeon. Jack and I decided that we are not at a stage where this is an option we are willing to consider. To many risks and complications. If we keep him stretched and up in his gait trainer his legs are not so bad. He definitely could use some botox in his hamstrings right now but overall as long as we keep him weight bearing he is fine. He has been taking tons of steps lately. He walked across the distance of our small living room atleast 20 times the other day. He kept putting himself in the corner.
